Tuesday, August 30, 2005

thank you, everyone

Thanks for the well wishes for the kitties and everyone else who lives in the Oubliette. We are 300 miles (or 482 km, whichever you prefer) from the coast here in Huntsville, AL, so what we had to endure was Tropical Storm Katrina, not Hurricane Katrina. We didn't even loose power for more than a minute at a time, unlike the other half of the county.
Also, for those who have been concerned with my personal health, my Remicade infusion went well on Thursday, and my joints are feeling oh, so much better. I'm pretty exhausted, but I was also 8 weeks overdue for an infusion, and I'm supposed to get the infusions every 8 weeks. You do the math. My infusions always leave me feeling exhausted, and/or kinda crappy for 24-48 hours afterwards. This time it's taking a little longer for the exhaustion to wear off, but the joint pain had gone away within 36 hours of the infusion. Ah, relief.

The vertigo spells are less frequent since I started on Neurontin, a drug which I have been on before for migraines, which is primairly for seizures. My balance is still not the best in the world - I think I've become over-confident about moving around inside the house. In the house I have walls, furniture, etc. to grab if I start to loose my balance. So, I've fallen a few times, mostly harmless, but the one that scares me the most is the near miss I had with loosing my balance at the top of the stairs to the basement. There's no door since half of the basement is completely finished, and is a rec room/guest room. Head first down the stairs would have been very bad. Outside the house I'm more careful, and use a cane.

I still have short-term memory problems, ringing in my ears almost constantly, and a loss of coordination, especially fine dexterity. Also, the heat and/or humidity slays me, so I don't go out much in the day time, and have become mostly nocturnal. Horaay for DVRs! I can watch my favorite shows whenever I want.

An unforseen side effect of raising the dosages of some of my medications (like the ones that keep me sane) is that they supress my appetite. I simply don't really feel like eating. Which can cause some problems. So, I've been drinking Boost High Protein supplement shakes in lieu of a meal. 4 shakes is enough to sustain a person, at the 1000 calorie level. More than enough protein, carbohydrates, vitamins, minerals, etc. Boost is simply a more palatable version of what goes into a feeding tube. Yep, it was originally developed to be total liquid nutrition, and still is, with a whole lot better taste. The chocolate is downright yummy.

Once again, thank you to everyone who has expressed their concern, both over the past couple of days, and the past few months. If you want to help out while I'm out of work, there is an Amazon.com Click-to-Give box on the right side of this site. That's the closest thing to an ad you will ever see on my site. Without your support, and just someone to chat with, I don't think I would have taken everything as well as I have. Thanks again.



Michelle said...

I'm glad that you didn't have to deal with the worst part of Katrina. We got dumped with rain here in Kentucky, and I had to practically swim to my classes Tuesday.

Glad to hear you're feeling a bit better too. Just be careful around those stairs!

mira said...

I'm sure you had to go swimming. I grew up in Kentuckiana, southern Indiana, 30 miles north of Louisville, and all of my family is still there, so they got all the rain you did. At least you didn't have to deal with the winds. That was still hairy, even 300 miles inland.

Thanks for support!